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About CNS: Background
 

“During the 1990s, researchers learned about the workings of the brain. With our support, in the decade to come, scientists will totally transform medicine by learning how the brain can be repaired and regenerated.”

Fia Richmond, Founder and President
Children's Neurobiological Solutions Foundation

cns_bullet  More than 14 million children and young people are living with complex, debilitating brain disorders. Their families struggle with the chilling reality that medical science does not understand the underlying causes of more than 90 percent of these devastating conditions.

CNS was founded in 2000 to help these children and their families by going beyond the current boundaries of scientific research.

In its first decade, CNS is raising funds to drive advances in clinical research and therapies and to provide up-to-date information and resources for parents, caregivers and the medical community.

CNS was founded by Fia Richmond, whose son Palmer has an undiagnosed brain injury that has left him severely disabled, unable to walk, talk or sit independently. In fighting to cure her son, she discovered that millions of other parents faced similar challenges, and that research to find treatments or cures for children like Palmer was woefully under-funded.

CNS is directed by a volunteer board comprised of business, entertainment industry and public policy leaders, medical researchers and parents.


What Sets CNS Apart


Children with brain disorders and their families face a sobering reality: unlike pediatric cancer, research on pediatric neurological conditions is fragmented, disease by disease and institution by institution. CNS is dedicated to boosting research that crosses the boundaries that have made it difficult for scientists to share information, promote synergy, and find effective cures and treatments. Such unified research will help children with a wide range of disorders, while giving new hope to the growing number of children whose conditions doctors simply cannot diagnose.

CNS’ goal is to be a catalyst, transforming the current approach to research on the developing brain by fostering partnerships among a diverse group of leading scientists to deliver real improvements in the lives of brain injured children, and their families.

Because childhood diseases are so devastating, organizations focused on a specific disease have little choice but to devote much of their resources on stopping that disease now and then finding ways to repair the damage later. CNS complements the work of other organizations by focusing on that next step now. CNS funds research on how the developing brain can regenerate and repair itself.

  CNS’ research focus on what childhood neurological diseases have in common also encourages much-needed collaboration among researchers, and opens the way to new knowledge and therapies for the broad spectrum of childhood neurological challenges.

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CNS is a nonprofit research foundation improving the lives of children disabled by neurological disorders through research focused on brain repair and regeneration.
The Problem
Research for childhood neurological disorders is poorly supported, slowing development of laboratory discoveries into safe, effective treatments for children with neurological disorders.
The Solution
Fund
high-quality research focused on brain repair and regeneration.
Sponsor
meetings where physicians and scientists can work together
Encourage
young scientists to pursue pediatric neurological research
Advocate
increased funding for pediatric neurological research
Educate
families about options for treating their children

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